Welcome, readers, new and old! The subject of endometriosis is near and dear (as in, costly and painful) to my heart… not to mention most of my abdomen. As March 3-9 is Worldwide Endometriosis Awareness Week, I’m doing my part to shed light on the cause by featuring some women who also have faced this diagnosis.
Today, I’d like you to meet Jessica Worthley. Besides featuring my interview with her, I’m also offering Tomato Pie readers my novel Don’t You Forget About Me at the low, low price of 99 cents for the duration of Endo Week. But more on that in a bit. First, let’s meet today’s guest!
Hi there, fellow endo-girl, and welcome to Will Write for Tomato Pie! How about you take a moment to introduce yourself?
My name is Jessica and I’m 28 years old. I was born and raised in a small town (<1500 people) in Iowa. I have been married to my husband Josh for just over two years and we recently welcomed our first child, Sebastian, in January! We live in a slightly larger town (<6200 people) within a half hour from where I grew up. I worked in the finance industry for eight years but am now enjoying my job as a stay at home mom.
When and how did you first discover that endometriosis is a part of your life?
My endometriosis went undiagnosed/misdiagnosed for many years. It wasn’t until I started charting with Creighton in 2013 that my then fiance mentioned my symptoms to my practitioner. She advised me to chart my PMS symptoms to better determine if it was in a normal range or not. At our next follow up she saw the 14+ days of symptoms and referred me to our local NaPro Medical Consultant. I worked with him for a couple of months but nothing seemed to help for a long period of time. It was then that he mentioned it sounded like I could have endometriosis and referred me to the Pope Paul VI Institute in Omaha. The referral was accepted and in July of 2014 I had a diagnostic laparoscopy. They found a ton of damage and decided that a second surgery would be needed. In August of 2014 they went in with the help of the DaVinci robot to remove all the areas.
Tell us about some of the ways endometriosis has impacted your life, health and relationships.
When I was a teenager I remember having terrible periods. There were times I would lay on the ground in the fetal position crying because the ibuprofen/Tylenol/Midol was not alleviating the cramps. I would ask my mom if we could have the doctors remove my ovaries so I wouldn’t have to deal with the pain each month. After all, I could adopt if I wanted kids later on in life. I would constantly soak through pads in a short amount of time. When I was in junior high we went on a field trip to an amusement park. I brought supplies but apparently not enough as I ended up in my last pad and I soaked through it. A classmate asked what I sat in as I had a red patch on my jeans. She saw my embarrassed look and gave me her coat to wrap around my waist for the rest of the day to prevent others from pointing it out. In high school, I would get extremely light headed and the nurse would always comment how pale looking I was and would tell me to go home for the day. It got to the point where I ended up staying home every month for the first one or two days of my cycle. After high school, it started to affect my job. I would have to call in sick on some cycles still and then I started to have pains in my abdomen mid cycle. It was at this point that I started a multi month journey of doctors visits that eventually led to a colonoscopy and a misdiagnosis of irritable bowel syndrome when the colonoscopy didn’t find anything wrong.
What have been some of the treatments you’ve used, and how effective were they?
The first treatment I was prescribed while in college was the birth control pill. Though because of a genetic mutation that increases my chance of blood clots I also had to start taking a baby aspirin to counter the increase associated with the pill. I was on this for a couple of months when I realized it wasn’t helping and in fact was making me feel worse. I figured this was just normal for me and decided to stop the pill and deal with it. Fast forward five years and my practitioner saying it wasn’t normal, my medical consultant started me on HCG injections post peak as I had low progesterone levels. It seemed to help a little but I was still experiencing painful cramps though the amount of days had decreased with the HCG. he then put me on a tranexamic acid for my heavy cycles. I was on this for a couple months but I was getting debilitating cramps at work as I was passing half dollar size clots. It was at this point he referred me to have the surgeries.
A murder mystery about… endometriosis? For real? For real! And it’s only 99 cents through March 9, 2016!
Has your faith impacted what treatments you would accept? In what ways?
My faith has impacted what treatments I would accept. When I was put on the pill, I knew it was OK since I wasn’t sexually active and it was for medical purposes and not contraconception purposes. However, when the first pill was not successful I would have been more prone to take the doctors suggestion and get the IUD placed had it not been for my faith. I knew eventually I would get married and wouldn’t want to be using birth control so, I didn’t want to choose a more permanent option like the IUD.
Have you found your Catholic faith to be a help or a hindrance in your relationship with your endometriosis treatment team? How so?
Had you asked me this year’s ago, I would have said hindrance since many doctors like to say birth control is your only option. However, now I see that my Catholic faith actually helped. If it wasn’t for my faith I would have settled with a treatment plan that just masked my symptoms and didn’t actually treat the underlying problems. If it wasn’t for my faith, I would have not felt the need to learn NFP which ultimately led me to my NaPro journey.
Imagine that a friend of yours has just been diagnosed with endometriosis and asks for your advice. What would you tell her?
I would recommend she see a NaPro doctor over a regular doctor as the techniques they use in surgery are far superior at removing the endometriosis as well as reducing the chances of it coming back in the same areas. They also listen to you and will keep trying to find the underlying cause and not just write a prescription to get you out of their office.
Thank you, Jessica, for sharing your story with us. I especially like how you said, “If it wasn’t for my faith I would have settled with a treatment plan that just masked my symptoms and didn’t actually treat the underlying problems.” I’ve found it to be true in my own life, and I’ve seen how true it seems to be across the board.
Readers, please comment to thank today’s guest! Meanwhile, don’t you forget to get your copy of Don’t You Forget About Me at the low, low price of 99 cents for the duration of Endo Week. Spread the word!