Welcome, readers, new and old! The subject of endometriosis is near and dear (as in, costly and painful) to my heart… not to mention most of my abdomen. As March 3-9 is Worldwide Endometriosis Awareness Week, I’m doing my part to shed light on the cause by featuring some women who also have faced this diagnosis.
Today, I’d like you to meet Brittany Schmidt, who also blogs over at Sapphire Blue Soul. Besides featuring my interview with her, I’m also offering Tomato Pie readers my novel Don’t You Forget About Me at the low, low price of 99 cents for the duration of Endo Week. But more on that in a bit. First, let’s meet today’s guest!
EMC: Hi there, fellow endo-girl, and welcome to Will Write for Tomato Pie! How about you take a moment to introduce yourself?
Brittany: Hello, my name is Brittany Schmidt and I am a 23-year-old living in the frozen tundra of Minnesota. I am a devout Catholic dedicated to seeking holiness and learning about my incredible Catholic faith that astounds me every moment of every day. My husband and I have been married for almost two years and I feel so blessed to have such a supportive best friend and companion by my side. I am currently working towards my Doctorate in Chiropractic, I have two years left of school and I cannot wait to graduate and be a physician that is dedicated to optimal health and natural wellness.
EMC: Sounds like a good thing! When and how did you first discover that endometriosis is a part of your life?
Brittany: Shortly after starting my doctorate in the Fall of 2014 I began to have a persistent pain in my lower right side, I also noticed my monthly cycles became heavier and more painful. I sought help and advice from an OB-GYN who did nothing, I am still very angry about this. The pain continued and got increasingly worse until one day in May (2015) while I was at school I experienced an intense and sudden pain. I went to the ER where they told me I had an ovarian cyst rupture and that I had another one growing and should follow up with my OB-GYN. I decided to go see a different OB-GYN who was wonderful and finally listened to me. She suspected endometriosis. We set a date for laparoscopic surgery at the end of July 2015; on that date she removed an ovarian cyst the size of a tennis ball and confirmed it was an endometrioma and that I did in fact have endometriosis.
EMC: A tennis ball! Yikes! Tell us about some of the ways endometriosis has impacted your life, health and relationships.
Brittany: Endometriosis has impacted my life in many ways. I’ve always considered myself strong and able to overcome any sort of pain or illness and I never expected to experience such a debilitating condition. Endometriosis has interrupted my hobbies such as running and exercising, endometriosis has brought on many painful periods that have caused me to miss days at school or social outings, endometriosis has sent me to the ER several times because the pain hasn’t been manageable, endometriosis has caused me to have two surgeries in the past 6 months, endometriosis has made sex with my husband almost unbearable, and endometriosis has had a major impact on my emotional capacity.
I don’t look sick and I feel like I am battling something terrible. When I realize I will have this disease forever and that I will have a future of recurring surgeries, endless pain, and possible infertility I feel my heart shatter. I’ve never been so devastated over something in my entire life and it has affected my relationships because I don’t think anyone can truly understand what I am going through. No one feels my pain, no one knows my fear of not being able to conceive, and no one knows how much it hurts both physically and emotionally to be intimate with my husband. I don’t like talking to others much about it because not only are they incapable of understanding my feelings but I am afraid they will tire of having the same conversation over and over again and lose sympathy for me. Because that’s what endometriosis is, it’s the same conversation over and over again, a conversation consisting of abnormal cell growth, pain, recurrence after surgery, infertility, and the emotional heartbreak that comes with having an invisible illness.
On the positive side, it has taught me to be more aware of my body and my needs and limitations, I do take better care of myself both emotionally and physically since my diagnosis. Endometriosis has shown me how fragile my human flesh is and that there is a need for a healing and compassionate God, endometriosis has strengthened my faith so much and shown me the power of redemptive suffering. I am a better Christian because of my endometriosis and that is a huge gift and blessing. I also believe that all of these experiences will make me a better doctor and more compassionate to those who have chronic pain.
A murder mystery about… endometriosis? For real? For real! And it’s only 99 cents through March 9, 2016!
EMC: What have been some of the treatments you’ve used, and how effective were they?
Brittany: It is hard to say what was effective and what was not, I may think that because I had recurrence of endometriosis after surgery all of the treatments I tried were not effective, however, what if the recurrence would have been faster or more extensive if I hadn’t been using the therapies I was? I don’t know, there is no way of knowing, but I think it’s important to keep in mind when discussing what is a valuable or effective treatment and what is not. After my first surgery in July I changed my diet by cutting out dairy, limiting gluten, switching to all organic meat, and only consuming 30 g of sugar (that included sugar from fruit). The diet was harder than I expected but I will say that I felt better while doing it, mostly because it was something I could control and I felt like I was actively contributing to preventing my illness. I also had weekly acupuncture sessions which I LOVED, it was so relaxing and the quiet time that it brought was emotionally healing. I also felt the acupuncture helped the healing of my scars and reduced my pain that continued after surgery. Again, attending weekly acupuncture sessions made me feel like there was a component of control in the midst of an uncontrollable disease. A few months after surgery my pain unfortunately returned and I had the presence of more cysts confirmed by ultrasound, I decided to yet again switch OB-GYNs and see an endometriosis specialist. The specialist explained that removal of endometrial adhesions by surgical ablation (burning or cauterizing) was not very effective and that there was a high recurrence rate. I was angry when I heard this, why did I have an ineffective surgery? Or why didn’t the OB-GYN who did my first surgery fail to tell me that there was a better surgery out there? Is it possible that she didn’t know? This is unacceptable to me. The specialist told me that he uses excision to fully resect all endometrial adhesions and that there is much less of a chance of recurrence with this type of laparoscopic surgery. I am now two weeks post-op from having excision by laser to remove more endometriosis. I am hoping that my outcome this time is much better and longer lasting than my last surgery.
EMC: I hope so, too! Has your faith impacted what treatments you would accept? In what ways?
Brittany: My faith has most definitely impacted what treatments I would accept. Since getting my diagnosis every doctor I’ve seen has recommended the birth control pill. This was really hard for me because the pill is something I have been so publicly against for so long for both ethical and medical reasons. I could not imagine taking the pill; the very idea of it nauseates me. I decided to seek guidance from our parish priest who was also apprehensive about granting permission to use the pill. He told us that the pill works in different ways and one of those ways is as an abortifacient in case there is breakthrough ovulation, of course as a devout Catholic I was not okay with this. Our priest granted us permission to use the pill only if we could detect if there was breakthrough ovulation and then abstain during that time, if we were not able to detect ovulation then we had to abstain during the course of taking the pill. What a burden, huh? Hubby and I finally decided to reject the pill, it was a decision that came with much prayer and many long conversations, but at the end of the day we were dedicated to our faith and to protecting life.
EMC: Have you found your faith to be a help or a hindrance in your relationship with your endometriosis treatment team? How so?
Brittany: My endometriosis treatment teams have been very considerate and open to the fact that our faith comes first and that we reject birth control of any kind, however, I don’t think that they truly understand where we are coming from. I’ve never felt pressured or judged by my health care team because of my faith and subsequent choices but I do think that it has created a bit of a hindrance because they don’t know how else to treat me. The only other option I’ve been given is to conceive a child. Ironic, my options are either the birth control pill or to conceive a child, neither of these options are ideal right now so it kind of leaves me in a place where no one can really help me or offer me any sort of advice.
EMC: Imagine that a friend of yours has just been diagnosed with endometriosis and asks for your advice. What would you tell her?
Brittany: I would say first of all, if they are going to have surgery to make sure the surgeon is going to remove all endometrial adhesions by excision and NOT ablation. I feel like my first surgery with ablation was a waste and was very upset when it all grew back right away. Women need to know that there is a more advanced and successful surgical method of removing endometriosis and shouldn’t have to have undergo the effects and dangers of anesthesia and surgery just for it to be ineffective. I would also tell her that she is more than a diagnosis, that although endometriosis is devastating, that positive things can always come from terrible situations if they are open to it. Embrace suffering, keep moving forward, find support by joining an online support group (there are many on Facebook), and remember that we are never alone in Christ who is bigger than all things—even endometriosis.
Excellent point, that last one, and one that is really easy to forget on those days when we’re just underwater with the pain, be it physical, emotional, or spiritual. Brittany, thank you so much for sharing your story with us.
Readers, please comment to thank today’s guest! Better yet, go visit Brittany at her blog. Meanwhile, don’t you forget to get your copy of Don’t You Forget About Me at the low, low price of 99 cents for the duration of Endo Week. Spread the word!